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X-ORIGINAL-URL:https://sleimpn.org/
X-WR-CALNAME:Sleimpn
X-WR-CALDESC:Sociedad Latinoamericana de Errores Innatos del Metabolismo y Pesquisa Neonatal. Próximo Congreso: 22 al 25 Octubre de 2024, en Uruguay.
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BEGIN:VEVENT
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DTSTART;TZID=America/Mexico_City:20260603T160000
DTEND;TZID=America/Mexico_City:20260604T180000
DTSTAMP:20251119T231400
UID:MEC-887caadc3642e304ede659b734f79b00@sleimpn.org
CREATED:20251119
LAST-MODIFIED:20251119
PRIORITY:5
TRANSP:OPAQUE
SUMMARY:Rare Diseases in a Changing & Competitive Europe
DESCRIPTION:\n\n\n\nSAVE THE DATE! The next ECRD will be held on 3 & 4 June 2026 in Prague and will be titled “Rare Diseases in a Changing & Competitive Europe: Shaping policies to address the unmet needs of people living with rare diseases”. \nThe European Conference on Rare Diseases & Orphan Products (ECRD) is the largest patient-led policy-shaping event on rare diseases in Europe.\nBy bringing together people living with rare diseases and patient advocates alongside policymakers, healthcare industry representatives, clinicians, regulators, and Member State officials, EURORDIS leverages the strength of this unique network to advance goal-driven policies that improve the lives of people living with a rare disease and their families.\nECRD 2026 is expected to unite over 500 participants in Prague, with an additional 300+ joining online. Thanks to its hybrid format, the conference will provide an unparalleled platform for connection and collaboration, enabling participants across the rare disease community to exchange knowledge, share experiences, and build partnerships.\nTo revisit the key messages and conclusions of previous ECRDs, please see our dedicated webpage. ( https://www.rare-diseases.eu/previous-ecrds/ )\n\n\n\n\n \n \n
URL:https://sleimpn.org/events/rare-diseases-in-a-changing-competitive-europe/
CATEGORIES:Congresos
LOCATION:Prague y online
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